Sharon terry pxe
WebbSharon Terry. Introduction: Pseudoxanthoma elasticum (PXE), a multisystem orphan disease, clinically affects the skin, the eyes, and the cardiovascular system with … WebbSharon Fontaine Terry is the president and CEO of Genetic Alliance, a nonprofit that advocates for advancing genomic research. While she is now heavily involved in the …
Sharon terry pxe
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Webb10 juni 2011 · Pseudoxanthoma elasticum (PXE), a prototypic heritable disorder with ectopic mineralization, manifests with characteristic skin findings, ocular involvement, and cardiovascular problems. WebbSharon F. Terry is President and CEO of Genetic Alliance, a network of more than 10,000 organizations, of which 1,200 are disease advocacy organizations. Genetic Alliance …
WebbSharon F. Terry in Waterbury Connecticut is a health advocate. She co-founded PXE International when her children were diagnosed with pseudoxanthoma elasticum in 1994. In 2009 she was elected an Ashoka Fellow for her entrepreneurial work in drug development for genetic conditions. Read full biography Is Sharon F. Terry still alive? WebbAbstract PXE International, a disease advocacy group, plays a central role as a catalyst in several research initiatives focused on the biology, epidemiology, and genetics of pseudoxanthoma elastic...
WebbTo examine 54 unrelated South African PXE patients for ABCC6 PXE causing mutations. Patients were screened for mutations in ABCC6 using two strategies. The first involved a … WebbSharon Terry CEO at Genetic Alliance, Ashoka Social Entrepreneur, Advocate, Speaker on recognizing people as the drivers of their own health, Student and teacher of Gestalt Awareness Practice
WebbSharon F. Terry is President and CEO of Genetic Alliance, an enterprise engaging individuals, families and communities to transform health. Genetic Alliance works to …
WebbSharon and Patrick Terry live in the Washington, D.C. area. Aside from skin and eye lesions that continue to progress, their children are healthy and draw a strong sense of identity … first year university students 8 lettersWebbSharon Terry is President and CEO of Genetic Alliance, a network of more than 10,000 organizations, and the founding CEO of PXE International, a research advocacy … camping knife fork and spoon setWebbFormer college chaplain and Ashoka Fellow Sharon Terry is President and CEO of Genetic Alliance, a network of more than 10,000 organizations. She's the founding CEO of PXE … camping knife kitsWebbSharon F. Terry is President and CEO of Genetic Alliance, a network of more than 10,000 organizations, of which 1,200 are disease advocacy organizations. Genetic Alliance … first year uni student work experienceWebb18 sep. 2001 · Sharon Terry, M.A., is founding Executive Director of PXE International, a research and lay support organization for pseudoxanthoma elasticum (PXE). Also serving as Vice President for Consumers for the Genetic Alliance, Ms. Terry's work includes providing technical assistance to lay advocacy groups in collaboration with researchers. camping knaus lackenhäuserWebbPXE patients frequently experience visual field loss and skin lesions, and occasionally cardiovascular complications. Histopathological findings reveal calcification of (PDF) Mutations in ABCC6 cause pseudoxanthoma elasticum Sharon Terry - Academia.edu first year university student internshipsWebbSharon F. Terry is President and CEO of Genetic Alliance, a large network engaging individuals, families and communities to transform health. She cofounded PXE … camping knife sets